Yesterday at noon my rheumatologist injected steroids into both my hip bursae, one for each side. To my relief, it wasn’t nearly as bad as I feared, though his pushing and pressing on the area beforehand, and the pre-injections of lidocaine hurt like a you-know-what. Ow, ow, ow! But once the anesthesia kicked in, I felt no more than a slight sting and a little pressure as he injected the steroids.
I wish I could say that my hips are much better today, but so far, they’re not. Last night I tossed around as usual, watching the hour hand of my clock make it’s slow circuit through the night. Today, as I sit here writing, they still ache.
But I’m not giving up yet. The doc warned that it could take a few days before the steroids worked, and that it was possible I’d have even more pain before they do. So the jury’s out. I’m hoping for the best.
My rheumatologist said something interesting as he treated me. “’Arthritis’ is a misnomer for this disease,’” he said conversationally. “It’s Greek—‘arthro’ means joint, and ‘itis’ means inflammation. Rheumatoid arthritis certainly includes joint inflammation, but it’s far more systemic. Your bursae are terribly inflamed because of your rheumatoid arthritis. It affects not only the joints, but the bursae, the tendons and ligaments, and the cartilage.”
I was a little surprised. You’d think by now I’d know just about all there is to know about RA, but I hadn’t really grokked that it affected all those things. Denial is strong even as we try to accept.
He went on. “And you know it also affects other parts of the body, as well. The heart, the vascular system, even the eyes.”
I told him I knew that part.
“For that reason, I think it’s misnamed. RA should really be called ‘rheumatic disease.’ It shouldn’t be confused with other forms of arthritis. They just aren’t the same thing.”
It was nice to hear him say this, and I told him so. I also told him it was nice to have a doctor who didn’t question my pain or try to tell me that I was imagining it. I thanked him for that.
He chuckled. “Look. If you’re in here asking me for steroid injections, your pain is real,” he said. “These are not pleasant. And not only that, but you’ve waited quite a while to ask for them—you first told me about your hip pain 18 months ago.”
“When it first started, it seemed mild,” I said. “I felt sort of embarrassed complaining about it, considering how bad the RA can hurt. This didn’t compare at the time. Now, it hurts a lot more. I broke down.”
“You are incredibly tough,” he said. “I’m often amazed at just how tough my RA patients are. They endure pain that most people can’t even imagine.”
Twenty minutes later I was on my way to have lunch out with my Mom and my aunt. I was smiling. My rheumatologist made me feel good about myself. He taught me something new and gave me confidence in my own perceptions. While the steroid shots may or may not work (I think they will), I feel better today even if my hips don’t, quite yet.
I’m betting that you’ll feel better shortly. The reduced pain level will make PT exercises easier to do, and that will help, too.
Lunch out with your mom and aunt sounds like fun. 🙂
May things continue to go your way.
Hope you’re feeling better soon. By the way … I knew you were tough!
As someone who has had that shot I can tell you first hand it does help! I do feel silly though, I thought my rheumatologist (who is not one who shares RA information) really didn’t appreciate the pain I was having and all the prodding around to find the ‘right’ spot was her way of showing it. I guess I will have to forgive her now, lol. Thank you!
You are tough Wren and hopefully you are on your way to feeling good hips soon!
Oh Wren, it’s so nice to be validated like that once in a while! I’m very happy for you that you have a rheumy that listens and understands 🙂
I hope that this reply finds you feeling relief from your hip pain!
I’m hoping you feel the effects of those shots soon!
It’s a great feeling when our doctors show that kind of understanding and validation of what we go through. It sounds like you’ve got a wonderful rheumatologist.
Sending you warm hugs and healing thoughts to go along with those steroids!
So good to hear you’ve got an understanding rheumy, that’s so important! Hope the injections sort out those hips.
I just had my first steroid injection in my hand at my last appointment. It was terrible! I can’t imagine one in my hips…you are SO tough! Hope it kicks in soon and you find relief.
I hope that the ‘roids kick in and give you relief. As we know, this soft tissue damage is real.
It is nice to hear your doc admitted that RA is misnamed. Too bad the professional societies (e.g. ACR) aren’t pursuing this.
I’m going to tell my Mamma about this. She’s often said there should be another name for what she is going through. She’ll be seeing a new rheumatologist as soon as she recovers from her recent surgery, and I hope that doctor will be as fine as yours seems to be, Wren. All best and here’s hoping you feel the best effects very, very soon!
You are a tough little bird, and good for you for having the strength and courage to ask for the steroids. I hope they work fast, and bring you the relief you deserve. Take care, Wren.