Twitter Chat – Being Your Own Advocate in Treatment Decisions

I plan to take part in this helpful and informative Twitter chat. Join me there! And thanks, Carla, for reminding me and others about it!

Carla's Corner

On Thursday, April 13 at 7 pm ET, Megan Starshak (@TheGreatBM) and Keri Ann Flaccomio (@keriannecdotes) will host the first #FinelyTuned Twitter chat, “Being Your Own Advocate in Treatment Decisions,” with special guest Aimed Alliance (@aimedalliance), a non-profit organization committed to improving access and transparency around quality, patient-centered health care. To participate in the conversation that evening, all you have to do is follow the #FinelyTuned hashtag on Twitter.

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Strategerizing RA

StrategerizingWhat do you do when your rheumatoid disease flares? Do you have an “action plan?”

I don’t have one of those. My flares don’t come and go like they once did—they’re pretty much constant these days. What I did—and do have—is a strategy aimed at soothing (if not actually relieving) the joint pain and helping me cope with it.

Read all about it at RheumatoidArthritis.net. And thanks for stopping by! It means so much to me! I hope that reading about my “strategerizing” tactics will help you cope succussfully, day by day, with your rheumatoid disease.

Rosacea and RD

I’ve been fighting an annoying rosacea flare since November last year. It’s sort of fun (and

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WC Fields illustration by Rocky Sawyer

sardonic) to blame it on the outcome of the presidential election, but I doubt that’s what actually triggered it. Like that famous old comedian and actor WC Fields,  I’ve had the skin disease for decades, now. In my case, it comes and goes without warning.

Increased inflammation in my body is what causes my rosacea to flare, making my face look like a summer strawberry year-round. My autoimmune rheumatoid disease causes that systemic inflammation. And that brings up my next leap of logic: Might rosacea and rheumatoid disease be related?

Find out here. 

Wee Beastie Laughter

hu-kitty-kitty

You know, laughter is good for you.

I was just chortling at our black cat Kitty-Kitty (I know, I know, but it fits her perfectly), who’s mrrp-ing with longing at a tiny hummingbird at the feeder just outside the window. She can’t get the hummer and wouldn’t really know what to do with it if she did, but that plaintive little mrrp just slays me …

I love writing about the gifts my little buddies give me each day–and how those gifts affect my physical and mental well being. Read more here.

Catastrophe!

catastrophe2
Illustration courtesy RheumatoidArthritis.net

It’s this @*#!! rheumatoid disease, which is making my hands feel like padded garden gloves filled with gravel, sand, and shattered glass. My feet are OK, today, and the rest of me feels just generally tender and battered. I figure this is how I’d feel after going a round with Ali and recuperating for a month…

Please read the rest of the story here.

Advice, un-asked for

heartfeltOver the years I’ve had countless people, from dear friends to complete strangers, offer me heartfelt advice about how to treat my rheumatoid disease. I can’t remember ever asking for it–the “helpful” words just spill from their lips, unsolicited.

I decided to look into what motivates people–family members, friends, complete and utter strangers–to do this. Read more at RheumatoidArthritis.net.