Out of a Table-sized Box …

… comes an art-sized table.

When I started putting my new drawing table together on Saturday, I discovered that it would require screwing in about a thousand screws. My hands just aren’t up to that, unfortunately. So, after a bit of thought, I decided to head to the hardware store to buy myself (hopefully) an inexpensive electric screwdriver.

An hour or so later, I had one. Made by Black & Decker, and only $20! Yay! I headed home, opened the box my new tool was in, and came to yet another dead stop. It had to be charged for at least 16 hours before use. So, shaking my head, I plugged it in and put off building the new table until Sunday. Disappointing, really.

Sunday, mid-morning, arrived. After reading all the directions, it was clear I was going to need some help, even though I had a magic electric screwdriver. Along with screws, there were Alan wrenches involved, and of course, balancing one piece on or next to another other for joining by screws and Alan thingies. So I enlisted Mom. To my surprise, she was happy to help!

And so, two hours later, after much discussion, a little arguing, occasional grunting, much laughter, a few cries of dismay, and finally, an exhausted high-five, we were done. My drawing table was ready to use!

I cleaned up the construction mess, unboxed the task lamp, and attached it to the table. Both are “vintage” styles, and they look great together. Then I laid out my art things and a work-in-progress that I’d had to stop working on when we moved back in September, and as a final touch, put my Laughing Buddha at the top of the table, overlooking everything. Gazing at it made me smile. There were other chores to take care of Sunday, though, so no opportunity to use it all, yet. But Sunday night I went to bed a sore but happy camper.

Today, I had a writing assignment to complete, but tomorrow I’m planning to give the whole day over to art.

My hands are flaring painfully as I write this, and I’ve been alternately icing and heating a flared left shoulder. Still, I’m hoping for a restful night’s sleep tonight, and a mild-pain day tomorrow.

Here’s my already-beloved art-making place:

New Drawing Table

Revisiting an Old Passion

Vintage Drafting TableI took a big step forward this week. For some time now I’ve yearned to start drawing and painting again. The talent I was born with is still with me, but it’s been decades since I’ve created anything beyond the occasional doodle. Since moving to our new apartment back in September of last year, I’ve been slowly collecting art supplies: paper, paints, colored pencils, drawing pens in the hope that I could start exercising my art muscles again, practicing and burnishing old skills, and preparing myself to learn new ones.

But until recently, I’ve had no space to spread these things out where I could work on something off and on as time and my rheuma-hands permit. Creating art does take time, and the creative urge (at least for me) is easily squashed when I’m forced to get all my supplies out and then put them all away again an hour or two later every time I want to work on something. For me, art is a spontaneous undertaking: the muse beckons or time and inclination merge, and I need to get to work. Right then, not later, not after having to set the space up yet again. Not being able to do this was frustrating.

But now, I have a Room Of My Own (ROMO). For the first several months after Mom and I moved, we had to use the big third room in our new apartment to store all of mom’s excess stuff. But that’s all now in storage elsewhere. So, after saving my pennies for a while, and comparing prices all over the place, I finally took the plunge. OnTuesday this week I ordered and paid for a beautiful, vintage-style drawing table, a sturdy, ergonomic adjustable chair, and a good task light.

UPS is delivering them today. To say that I’m excited is an understatement. It’s been too, too many years since I’ve been able to have my art supplies out where I can work on my art whenever I have the time and the urge.

Of course, the rheuma-dragon is being particularly unkind these days. He’s taken to concentrating most of his fury on my wrists, hands, and fingers, and I sort of need those to make art. But I figure I’ll just take it slow. Do what I can, rest, pace myself. Make the whole process more contemplative, and use it as a distraction from pain and frustration.

When my new “studio” is put together, I’ll post a photo.

For me, the decision to buy these artistic tools cements my determination to be visually creative again, something I can add to my writing as a way to express myself and help me cope with life’s stresses and the particular anxieties that having rheumatoid disease causes. I’m  now a step closer to making that happen.

RA and the Zombie Apocolypse

ZombieWalkerBeing so “invisible” and able to do things alone and unaided in spite of my RA has given me great hope for the future. Chances are, when the Zombie Apocolypse comes, I shouldn’t have a problem. The monsters, like everyone else, may not notice me at all …

You can read more about how my RA will help me beat the End of the World at RheumatoidArthritis.net.

About your bones …

Updated at end of story, Thursday, May 28:

May is Osteoporosis Awareness and Prevention Month, a fact I only learned about late last week. And while the month is nearly over, awareness of this insidious, invisible, potentially devastating and even deadly disease is important all year ’round, not just in May.

Your bones are alive. A healthy body replaces dying bone tissue with new, strong, healthy bone tissue. But osteoporosis causes the bones to lose tissue faster than the body can replace it. The resulting brittle, lattice-like bone structure breaks easily. Even something as simple and everyday as bending over or coughing can cause an osteoporotic fracture.

Osteoporosis_Infographic

A broken bone is difficult for anyone. But for the elderly or those with compromised health, it can mean catastrophe: loss of independence, permanent disability, or even death. The most common fractures occur in the hips, wrists, and spine.

According to the American College of Rheumatology (ACR), about 4.5 million women and a little over a million men over the age of 50 have osteoporosis. It’s a “silent” disease; there are no symptoms. Most people don’t know they have it until they break a bone. You’re at higher risk of osteoporosis if:

  • you’re of older age (over 30, but more commonly over 50);
  • you’re female;
  • you have a non-Hispanic white or Asian ethnic background;
  • you have lowered sex hormone levels (mainly estrogen loss during menopause and after);
  • you have a small bone structure;
  • you have a family history of osteoporosis;
  • you have inflammatory arthritis (rheumatoid disease, ankylosing spondylitis, etc.);
  • you take certain medications, such as corticosteroids;
  • you smoke cigarettes
  • you drink alcohol to excess. More risk factors can be found here.

There are some pro-active and simple steps you can take to avoid osteoporosis, or to treat it if you already have it:

  • If you smoke, stop. Smoking hastens bone loss.
  • Limit alcohol to three or fewer drinks per day.
  • make sure you’re getting enough Vit. D from your diet, sun exposure (but be wary of sunburn) or from supplements. Vit. D works in tandem with calcium throughout the body in many different ways, including building healthy bone tissue.
  • Do weight-bearing exercise regularly. It can be as simple as brisk walking for a half hour a day, five days a week, or doing gentle weight training or resistance exercises for the same amount of time. Many people mix them: walking one day, exercising the next, or 15 minutes of one, then 15 minutes of the other each day. Exercise is vital to build and strengthen bone tissue and to build and strengthen the muscles that support the joints and bones. Note: Tai Chi and yoga are excellent forms of exercise for osteoporosis. They strengthen muscles and bone, and they improve your balance, making falls much less likely.

Once osteoporosis is diagnosed, treatment is available in the form of medications, too. Some, called bisphosphonates, slow bone loss. They include such well-known drugs as Fosamax and Boniva. Other drugs may include Calcitonin or selective hormone replacement therapy.

Rheumatoid disease can cause changes in the bones that can make osteoporosis more likely to occur. It’s smart to have your bones scanned to determine you bone mineral density, or BMD, According to the ACR, “dual energy x-ray absorptiometry (referred to as DXA or DEXA and pronounced ‘dex-uh’) is the best current test to measure BMD. The test is quick and painless. It is similar to an X-ray, but uses much less radiation.”

Unfortunately, osteoporosis can sometimes lead to the need for knee or hip replacements. The American Recall Center has asked me to let you know that one option for knee replacements, the Zimmer Persona Tibial Plate, has been recalled due to issues that have forced some people back into surgery. To learn more about this, visit http://www.recallcenter.com/zimmer-persona-knee-replacement/ **

For further information, visit the ACR’s osteoporosis web page, or see the National Institutes of Health’s RA/Osteoporosis web page,

**UPDATE:  With the unfortunate weakening of the bones, sometimes osteoporosis can lead to knee or hip replacements. Be sure to always treat any surgery with care and ask appropriate questions. Do your research on the device that’s going to be put in. There has been a few recalls on these, the Zimmer persona knee recall being one for the loosening of the tibial plate. Mishaps like these can happen, which is why it’s important to get educated.

Accepting the Unacceptable

Wren accepts her increasingly crepe-y neck and her rheumatoid disease. She achieves peace of mind even as she applies moisturizer daily and injects Enbrel weekly. Acceptance isn't giving up or giving in.
Wren accepts her increasingly crepe-y neck and her rheumatoid disease. She achieves peace of mind even as she applies moisturizer daily and injects Enbrel weekly. Acceptance isn’t giving up or giving in. It’s more like choosing your fights.

“Acceptance” has become an almost dirty word, but it shouldn’t be. Some people have told me that if I “accept” my rheumatoid disease, I’m giving in to it. I’m giving up, not fighting, not trying to get better. These people don’t have much patience for me. I just smile, shrug my shoulders, and hope they never have to live with a disease like this one.

Read the rest of the story at RheumatoidArthritis.net.

Wrist Watch

I’ve just got to tell you! I’ve reached an significant milestone in my long battle with the rheuma-dragon: wearing wrist braces.

Wow! Earth-shaking, right? I know, I know. Pretty low on the excitement scale, isn’t it. But here’s the thing: I’ve tried using wrist braces in the past, and I’ve always ended up taking the miserable things off within a few hours. Purchased at a drugstore, in the smallest adult size available, they were nevertheless too big, heavy, clunky, and uncomfortable. Within a few minutes my aching wrist was aching even worse. What’s more, it wasn’t long before the stiff brace began chafing the skin around my thumb where it meets the palm, the top of my hand at the knuckles, and where the brace ended on my forearm. Finally, the

AN IMAK COMPRESSION GLOVE with an elastic support bandage helped with wrist pain, but wrapping and unwrapping was a PITA.
AN ISOTONER COMPRESSION GLOVE with a sticky elastic support bandage helped with wrist pain, but wrapping and unwrapping was a PITA.

rigid metal bar inside the brace, meant to prevent my wrist from bending too far, in fact merely impeded any attempt at normal movement.

It was all very frustrating.  Having some sort of wrist support when my wrists flared would have been a relief, but after trying a couple of different brands, I gave up. In the end, I just wrapped my hand and wrist firmly with an elastic support bandage. It was cumbersome and came undone easily, but it was better than nothing.

So you can imagine how intrigued I was when I ran across the Wellgate for WomenWellgate for Women PerfectFit Wrist Support PerfectFit Wrist Support on Amazon.com. The company claimed these braces were light and slim, made with the slender contours of a woman’s wrist in mind. Furthermore, the company claimed they were actually comfortable.

Unconvinced, I added them to my wish-list. They were a bit pricey–$18.99–and I needed two, since I never knew which wrist was going to act up. Having been burned on this type of product in the past, I wanted to think about it before I spent that much.

Months passed. And then a couple of weeks ago I was glancing through my Amazon Wish List again. My wrists have been giving me particular hell over the last couple of months, so I pulled up the info on the Wellgate braces again. They were still tempting, but …

… Oh … oh, wait!

The price had dropped considerably. I almost couldn’t afford not to get them! And they were rated four-and-a-half stars out of five, with more than 900 reviews.

So I took the risk and ordered braces for each hand. I figured if they didn’t work out I’d just send them back and get a refund.

I WEAR MY Wellgate for Women PerfectFit Wrist Support, Left Hand, with my Imak Compression Glove. I have a brace and glove for the right hand, as well.
I WEAR MY Wellgate for Women PerfectFit Wrist Support, Left Hand, with my Imak Compression Glove. I have a brace and glove for the right hand, as well.

Well, no way that’s gonna happen! You’d have to shoot me to get my new wrist braces away from me now. I mean, I. Love. These. Things! They’re everything Wellgate claims they are: soft and comfortable (made with memory foam), slim and form-fitting, plenty of support, lightweight, and they fit neatly beneath long sleeves. They don’t rub, cause hot spots, or chafe my skin. They’re also pretty decent-looking for something as dull and utilitarian as a body-part brace. The artist in me approves.

But best of all, these braces work. Wearing them lowers my pain levels. There’s a stiff support sewn into them, but it isn’t hard and obstrusive. It’s gentle. The braces are fully adjustable for tightness, too. The part around the thumb and palm fits close, with no gaps, and it feels good and secure. The only time I really notice I have them on is when I try to bend my wrist more than 10 degrees in any direction. They stop the movement gently but firmly, without raising my aggravation meter.

Finally, the materials they’re made of breathe. My skin got hot, damp, and sticky in no time when I wore the old braces. These don’t, though–and that’s even when I also wear my Imak or Isotoner gloves (for the extra compression and warmth). The Wellgates seem to be extremely well-made, too, with secure stitching and high-quality materials. I’ll let you know if they start falling apart, but honestly, I don’t expect them to. They’ll probably outlast me.

Wellgate didn’t ask me to promote this product, and I’m not getting any sort of payment or reward for doing so from them or anyone else. I just wanted to pass along this very good news about their very, very good wrist supports/braces to people who I know will really appreciate it. :)

Dreaming …

kandinsky-stgeorge-RheumaBlog“Fantasy is silver and scarlet, indigo and azure, obsidian veined with gold and lapis lazuli. Reality is plywood and plastic done up in mud brown and olive drab. Fantasy tastes of habaneros and honey, cinnamon and cloves, rare red meat and wines as sweet as summer. Reality is beans and tofu, and ashes at the end. Reality is the strip malls of Burbank, the smokestacks of Cleveland, a parking garage in Newark. Fantasy is the towers of Minas Tirith, the ancient stones of Gormenghast, the halls of Camelot. Fantasy flies on the wings of Icarus, reality on Southwest Airlines. Why do our dreams become so much smaller when they finally come true?”

–George R.R. Martin

Walking to Wellness


ED

A few years ago I visited my primary care physician for an annual check-up. She gave me a good going-over, studied my blood and urinalysis test results without commenting, and, as I sat there on the exam table, asked me some general questions along the lines of “How do you feel?”

I answered them easily. With the exception of my slowly increasing rheumatoid disease symptoms, I was feeling fine. I hadn’t had a cold in ages, I always got a flu shot, and I’d stopped smoking years before. This, I thought, was going well. She’d release me with a bill of good health any minute and I’d be on my way.

Not so fast. “Do you exercise?” she asked, fixing me with her steely, blue-eyed gaze.

Read more of my latest post at RheumatoidArthritis.net.